A Site for Resources and Reflections That May Help Those Navigating Aspects of the World of 'Special Education Needs'
Tag: PDA
"Bethany's mum visited today to find her with hundreds of burst vessels around her face and eyes." Beth has been exposed to a known trigger, (relentlessly and for hours I suspect), seemingly with no strategies to prevent the impact of the trigger becoming harmful. As a result of experiencing unmanageable stress, she became distressed and used her … Continue reading Bethany: “hundreds of burst vessels around her face and eyes”.
Four days ago (27th October) Jeremy, Beth's Dad, reported that she was back in seclusion - not the cell, in a two-room arrangement, but (crucially) with no hatch. So, no way of talking to anyone other than shouting through a door. So no way of hearing phone calls. It seems that passing her food involved … Continue reading Bethany is back in the cell
Last week, I was given the privilege of sharing the turning point in Bethany's story (see here). Following a BBC exposé her dad was 'allowed' into a meeting about her and finally, experts on PDA were listened to. A corner in her care was turned and she could finally see a way out of the … Continue reading Bethany’s Dad Gives the Rest of the Story
Bethany's story came to light a week or so ago. Whilst many of us in the SEN world are sickened and shocked - at the same time, we are not surprised. I have the privilege of having her Dad's permission to share his update. We are all familiar with the concept of 'meetings about me … Continue reading Bethany’s Dad Has Important News
Peter tells me it was his idea and maybe it was, or maybe his skilled speech and language therapist planted the seed. I'm not sure? Either way, it's been a great way to talk about what to say and what not to say, and to be honest, I think I would benefit from using this … Continue reading Is it a ‘thinker’ or a ‘sayer’?
By Rosie and Jo's mum I’m not an expert in behaviour management or child development. I’m a parent who has learnt lots over the years from reading, looking after my own children and talking to other parents of children with ASD. Controlling behaviour is an issue that lots of us parents seem to come … Continue reading How much control should my child have?
It Must Be Mum 