Month: August 2017

Broken.  Unmet need in SEN – more about the true costs.

Broken. Unmet need in SEN – more about the true costs.

By DJ and Velcro's Mum The tears haven't come for a long time, but today they did.... and I couldn't stop.  So I rang my dear friend, who just gets it, and talked... and sniffed.   The devastation physically and mentally to our family and home over the last year is now what I see … Continue reading Broken. Unmet need in SEN – more about the true costs.

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Early Intervention does not mean: “send them on a parenting course”

Early Intervention does not mean: “send them on a parenting course”

'Catch all' strategies prescribed indiscriminately (and that must be completed before other services are accessed) can't possibly be the right approach.  Sure, it is a way to manipulate waiting time information to show an improvement.  No doubt it will reduce demand too, as some families simply can't face it or can't manage to get there … Continue reading Early Intervention does not mean: “send them on a parenting course”

How much control should my child have?

How much control should my child have?

  By Rosie and Jo's mum I’m not an expert in behaviour management or child development. I’m a parent who has learnt lots over the years from reading, looking after my own children and talking to other parents of children with ASD. Controlling behaviour is an issue that lots of us parents seem to come … Continue reading How much control should my child have?

Just listen to me and properly assess him, please?

Just listen to me and properly assess him, please?

Not much to ask really is it? Parents generally know their children well.  When things aren't 'right' parents can be pretty good at noticing. Can't they? When children have difficulties, disabilities and/or medical issues their parents are a gold mine of information about those issues. Aren't they? Last year, by about 6 months into his … Continue reading Just listen to me and properly assess him, please?

They should have said sorry.

They should have said sorry.

There is no question that things would have been different if they had said sorry.  It doesn't change the past, of course, but it has the power to change future direction and how the future is experienced. For example: If they had said sorry then I would never have followed my instincts to probe further … Continue reading They should have said sorry.

SEND: There are costs to parents too.

SEND: There are costs to parents too.

Next month I will start my 'Return to Nursing Practice' course. This is not 'exciting' - I am not being turned into a carefree, responsibility-free 18 year old again.  It is 31 years since I first started as a student nurse and I worked until 4 years ago where I had a senior job in … Continue reading SEND: There are costs to parents too.