My superpower is being able to get to sleep wherever I am. Trains, planes, Minions films, I can tell myself to go to sleep and I do. What I can’t do lately, is stay asleep. I wake each night around 4am. And I wake with a jolt, and it is without fail the same thought racing around my head. “What will become of him?” Continue reading “What I think about at 4am.”
Month: April 2017
Another post by Cross and Ginger, back by popular demand…
School starts off as a great leveller. As parents we usually start with our eldest being dropped off, leaving us reeling from how fast time has gone, and wondering will they be ok, will they make friends, will they know how to manage without us. Often we fall in with other parents in the same boat, bonded by the same unfamiliar anxiousness. Then follows play dates, friendships, inevitable squabbles and misunderstandings mixed with pride and achievements. Gradually little personalities emerge. Shy, boisterous, bossyboots, clingy, sunny, helper. Occasionally however, a child doesn’t fit. Things that the other tinies take in their stride, this child struggles with, or simply cannot do. Initially there are sympathetic looks from the other parents. “We all have our off days” and “They’re so tired by this point in the week”. Continue reading “Other Parents “
A ‘must read’ post by Cross and Ginger.
Education is a funny thing. Before I had my children, I thought I knew what education was. It was very clear to me that it was the acquisition of qualifications via an institution, to equip me for work. No more, no less. On that score, I aced it. I plodded through school and University, and then pottered through a corporate career, before having three children, all of whom I had assumed would do pretty much the same. My husband’s life was a parallel, and we were very sure that our genes would produce academics of equal if not better quality. As I stroked my first baby bump, I smugly thought that my Precious First Born might read PPE at Cambridge, followed by a career in the Foreign Office. Maybe a couple of overseas postings, grandchildren at boarding school, all would be well.
Readers who have got this far will be relieved to know that I’ve since removed my head from up my own backside, and got over myself. Turns out that my ideas of the future might not have been wholly accurate. My children are of course, to me, perfect, and easily the most beautiful creatures on God’s Earth. The eldest two have additional needs, and the third is stroppy and a bit idle. I love every atom of their beings, and whilst they are the ones with the learning difficulty labels, the real education has been mine. Continue reading “EHCP – The C isn’t compliance!”
“Well if she had tried everything, then that was the time to bring in someone with some more expertise.”
…said the rather sound, very experienced, occupational therapist (OT).
Peter’s Year 1 teacher had told me that she had tried “Lots of carrot and lots of stick” and that “Nothing worked”.
Peter’s OT was intuitive, inquisitive, child-led and had had additional post-graduate level training in sensory integration. He first saw her in Year 4 and for some reason the subject of his Year 1 difficulties had come up in conversation.
Sounds so obvious to me now, but until the OT uttered these words it had never even crossed my mind that the Year 1 teacher should have realised that Peter needed a more skilled assessment of his learning needs. Continue reading “Wise Words”
Initially Peter wanted:
- to be believed by his teachers;
- some minor (mostly free) accommodations at school;
- the school staff to work with the NHS staff who: were appropriately skilled, had thoroughly assessed him and were willing to give their time for free to help them to think about these minor accommodations;
- school staff to learn to understand more about his difficulties and
- to believe his mum when she described how hard he was finding life.
We have come across some great people along the way, and I do think that there will be a pretty good ending to this story, but the last few years of Peter’s life have been extraordinarily tough. Continue reading “They’re not asking for much..”