My superpower is being able to get to sleep wherever I am. Trains, planes, Minions films, I can tell myself to go to sleep and I do. What I can’t do lately, is stay asleep. I wake each night around 4am. And I wake with a jolt, and it is without fail the same thought … Continue reading What I think about at 4am.
Month: April 2017
Another post by Cross and Ginger, back by popular demand... School starts off as a great leveller. As parents we usually start with our eldest being dropped off, leaving us reeling from how fast time has gone, and wondering will they be ok, will they make friends, will they know how to manage without us. … Continue reading Other Parents
A 'must read' post by Cross and Ginger. Education is a funny thing. Before I had my children, I thought I knew what education was. It was very clear to me that it was the acquisition of qualifications via an institution, to equip me for work. No more, no less. On that score, I aced … Continue reading EHCP – The C isn’t compliance!
"Well if she had tried everything, then that was the time to bring in someone with some more expertise." ...said the rather sound, very experienced, occupational therapist (OT). Peter's Year 1 teacher had told me that she had tried "Lots of carrot and lots of stick" and that "Nothing worked". Peter's OT was intuitive, inquisitive, child-led … Continue reading Wise Words
Initially Peter wanted: to be believed by his teachers; some minor (mostly free) accommodations at school; the school staff to work with the NHS staff who: were appropriately skilled, had thoroughly assessed him and were willing to give their time for free to help them to think about these minor accommodations; school staff to learn … Continue reading They’re not asking for much..
It's called a social communication disability for a reason..... I could give you pages and pages of examples that demonstrate that many, if not most, teaching staff not only lack knowledge but more seriously, lack awareness of this lack of knowledge, about SEND. Many of these examples are from before the changes to SEND provision … Continue reading When should we ask teachers for opinions on SEND?
"Because you want him 'Out of County'" For parents of children with additional needs this paradox (fighting for something you don't want to need) is normal. It ranges from constant, every day, exhausting mini-dramas, to full out, full scale all consuming battles for survival where you have 3 choices: remove your child from school altogether, … Continue reading Being forced to fight for things you never wanted to need.
By Rosie and Jo's mum When, close to tears of frustration, I told the LA case officer that, by refusing to issue the proposed amended statement which was three months overdue, she was withholding my right of appeal to the SEND tribunal, she looked me squarely in the eye and shrugged her shoulders. At that … Continue reading The Imbalance of Power
By Rosie and Jo's mum. I think I would have really benefited, in the early days, from someone warning me of two things. The first was how much paperwork you accumulate when you have a child with additional needs. The second was how important it is too keep good, clear easily accessible records so you … Continue reading What to record and how to store it?
Children should not be set targets as part of their written plan of SEN support. This change came about in 2014 with the publication of the Special Educational Needs and Disability Code Of Practice. Don't believe me? Well I did an audit of the use of the word target in the SEN COP. The results … Continue reading Children with SEN shouldn’t be set additional targets.
By Rosie and Jo's mum As an early years practitioner, I attended a few training courses on celebrating diversity. We would be encouraged to think with the children about the differences and similarities between us like the various rituals we have around family birthdays, which flavour crisps we like, what our houses look like, what … Continue reading The drive to stop our children being different.
.... than making a sandwich or doing your washing. Just like with the new approach to SEN Support in schools, that asks us to think about 'barriers to learning', the 'itmustbemum' mums are clear: "It is essential that the likely barriers to becoming independent are properly identified, assessed, then understood - so that support is appropriately targeted … Continue reading There’s a whole lot more to ‘independence’ than catching a bus….
I've been wanting to write about this and still can't really find the words. I want 'people' to stop and think, really think, about what it might be like to see your child in emotional pain, extreme fear, anxiety, confusion and significant distress every day. Literally every day. Many times a day. Often so severe … Continue reading Pain