What if... Lily receives excellent support from a school that is genuinely inclusive at heart. I can't help but wonder, what if? What if, from an early age, Peter had been offered the type of support, within the same sort of school culture, that Lily receives now. You see, Lily is believed. Everything stems … Continue reading Is the culture fostered by the school leadership team the most important intervention a child can receive?
I, as a rule, have good skin. I got a few spots on my forehead as a teenager, and that was it, I was very fortunate. Now as I type, I have a nasty itchy rash all along both sides of my chin, not unlike beardy snog burn. I haven’t got this from snogging, sadly. … Continue reading The hidden costs of fighting with the LA
By Rosie and Jo's mum When, close to tears of frustration, I told the LA case officer that, by refusing to issue the proposed amended statement which was three months overdue, she was withholding my right of appeal to the SEND tribunal, she looked me squarely in the eye and shrugged her shoulders. At that … Continue reading The Imbalance of Power
One way or another my life will change quite significantly today. A meeting is being held without me, or any direct contributions from me, but the outcome will be huge whatever the decision. No-one in the meeting knows me or my son, Peter, but decisions are being made about him which will affect the rest … Continue reading Meetings About Me Without Me
“He is 2 years behind but the SENCo says he won’t ‘qualify’ for an EHC assessment.” “School say she is doing well in set 3.” It seems to me that this is misinformation and not in any way within the spirit of the SEN Code of Practice that all schools are obliged to follow: The SEN … Continue reading How Far Behind Does She Have to be for an EHC Assessment?
So Peter has been in hospital for some time. The acute side to his condition has settled somewhat but in order for his progress to be maintained and continued Peter needs a therapeutic residential ASD placement. Everyone has agreed this. Making it happen on the other hand is another issue altogether. The impact on his … Continue reading It Must Be Mum – Part 7
...And the crippling practice of the Local Authority Staff begins. Earlier parts of the book can be found here. Peter (now age 10) was admitted to a Tier 4 CAMHS unit 150 miles away from home a few weeks earlier with, among other things, 'signs of school related trauma'. He had previously been in mainstream education … Continue reading It Must Be Mum – Part 6
By Rosie and Jo’s mum I remember the first question I asked on a forum for parents of children with autism. It was “How do you find a way to switch off from the stress and worry?” We were in the early days of our journey, very soon after Rosie’s ASD diagnosis, school were being … Continue reading The emotional impact on a parent