I'm exhausted with having to micromanage systems and process. Too often the paths to accessing the services my children needs are cluttered with semi-automated processes manned by professionals that are seemingly unable to use their knowledge, skills and judgement. Any pre-existing commonsense, autonomy and advocacy seemed to have been driven out. Most recently, CAMHS systems meant that … Continue reading Three powerful questions to help your child access the services they need.
I was recently asked to describe what I believe that ‘children with autism and their parents/carers want’. It’s a good job that there was no word limit…. I answered that we would like: our concerns to be properly considered and fully explored by professionals that are trained to and invested in understanding the subtleties that … Continue reading What is it you want, exactly?
These are the children that have a diagnosis of an autism spectrum condition, often following an assessment initiated by parents asking for help. They lurch from one day to the next, barely coping, just about surviving - but not living, not really. This is not a childhood you would wish on anyone. Their parent's request … Continue reading Nobody’s Problem
By Rosie and Jo’s mum I have been working with health and education professionals to get my children’s educational needs met for over ten years now. As time has gone on and their needs have increased, the opinions and recommendations from health professionals have been hard and harder to obtain in writing or at least … Continue reading We can’t tell education what to do